Hello everyone--Scott here. It has been a little while since an update since there wasn't much happening over the weekend (other than just fun with the kids and a dinner out with friends). I also have been getting back to work which is great therapy. Got some additional news today which I'll pass along to you all. We rec'd the second pathology opinion from Dr. Rosenblum (head pathologist at Sloan) today. He essentially confirmed the first pathology finding by Dr. Bouffard. Both pathologists see this as an anaplastic astrocytoma tumor that had certain areas were Grade 2 and other areas which appear to be Grade 3. Doctors (and I) think that any tumor including Grade 3 areas should be treated with radiation and chemo (typically at the same time). I am still pushing for second oncology opinion from Sloan, but we haven't gotten that yet.
Most likely, I will be starting radiation treatment in the next couple weeks. I will also likely be taking oral chemo mediation at the same time. We haven't scheduled an actual start, but I am ready to move forward whenever I can. I have started some work with a radiation doctor, where they started mapping out my head and started the computer driven process that aims the radiation directly at the former location of the tumor and the area immediately around it. They also custom make a mask that holds my head in place to make sure they are as accurate as possible. That work and the mapping will likely take them a week or so. After they get the mapping done, they are ready to go.
I am most thankful for Julie and my family. Julie has been amazingly supportive, brave, energetic and loving. She is the keystone of this family and I don't know what any of us would do without her. She has rec'd a great deal of help from many of our friends and family and that is much appreciated.
I thank you all for your support, prayers and energy. Also, we thank you all for all the cards, gifts, giftcards, food, etc that has been coming to the house, it is really amazing. You all are very generous....really beyond than we every could have thought.
Thanks again to you all. I love you all.