We are spending this week transitioning from home care to Hospice but this is a very smooth transition because it will be the same people from Atlantic Health that we will be working with and we have already developed relationships with all of them. They have been very helpful to us as we learn what is best at home to help Scott.
We, of course, feel heart-broken about the decision to stop chemotherapy (because it's not working) and transition to Hospice but we know it is what is best for all of us at this time. It is a relief to be able to be at home during this time as so much of our past several years have been spent in and out of hospitals and trips to the city that are too numerous to count. Now, we spend our days in a much more relaxed state of mind, finding little things to enjoy each day. Scott is truly teaching me to slow down. His common phrases to me are things like "Just Be" or "Shhhh" or "All Things" or "All Good." For all who know me, it is definitely difficult for me to "just be" but I'm trying.