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Monday, June 06, 2016

Atlantic Health In-Patient Hospice Room

On Monday, mid-day, Scott was moved to a beautiful private room on the 3rd floor of Overlook Hospital and admitted here as an in-hospital hospice patient.  He has been sleeping most of the day with very brief periods of eye opening and hand squeezing.  An ENT came and took out the very large packing (called a nose tampon!) and put in a smaller packing.  This has seemed to make him a little more comfortable and we are hoping he won't need as much morphine now.   He still has a lot of congestion and swallowing is difficult so he hasn't eaten or drank much since being admitted here on Saturday night.  For now, we are taking it day by day, hour by hour.  The hospice nurses will assess his needs and medications here over the next day or two and make a plan for the end of the week.

Thank you for keeping Scott and our family in your thoughts and prayers.  Having to watch Scott suffer is beyond the most difficult thing I have ever experienced.  I have moments when I think about the Scott that I fell in love with and I know that he is still inside his failing body - but I miss him terribly.  It makes me incredibly angry, sad, and terrified all at the same time.  Then I push past those feelings and I make sure that I treasure each moment that we spend together - each and every tiny moment because I know these won't last forever.

xoxo,
Julie

4 comments:

  1. There isn't a thing I could say to make any of this better, Julie. Just know that I'm thinking of you and praying for you, Scott, and the kids every day. I even had Charlie add Scott to his nightly prayers. You are incredibly strong, brave, and so kind-hearted. ❤️

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  2. I have been keeping all of you in my thoughts and prayers. Yes, spend every moment with Scott. Stay strong.

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